Sarah Defies Gravity

what one little chromosome taught me about love, life, and defying gravity.

Archive for the month “January, 2012”

Sarah is nine months old!

(I’m taking a little break from the Internet, but I wanted to update for Sarah’s nine-month birthday, since it’s kind of a big one.)

Happy nine months, Sarah! I can’t believe that nine months have gone by so fast, and that today, you are officially “out as long as you were in”.

You have changed our lives in your short nine months on this planet. Mine, your Daddy’s, your grandma and grandpa’s, your lola and granddad, and all of the other people who have had the pleasure to meet your sweet little roly-poly face.

At nine months old, you are still sweet and happy, but your ever-widening diva streak is, well, ever-widening. You have the look down pat, and sometimes I feel like I’m looking at a little tiny teenager.

You eat lots of different types of food! Whatever we eat, you eat a chopped-up-tiny version. You’re still working on teeth, but you have two sharp little fangs, one on each side of the top of your mouth. We like to joke that you’re part vampire. They are VERY sharp!

You still vastly prefer your bottle, though. We’re working on it.

Our tiny dainty miss weighs 13 pounds and is 22 inches tall. You wear size 3-6 months and size 0-3 months clothes, and everyone is always surprised when we tell them you’ll be one year old in April!

You still tolerate having shit put on your head, which is good, because I really like headbands.

You still rock your glasses. We opted to keep your Miraflex glasses for a little while longer because the Specs4Us still look frighteningly fragile.

You roll. You laugh. You babble. You sit unassisted for periods of up to 30 seconds. You are curious about your surroundings.

You are beautiful and we love you so much. Happy 9 months, baby girl. You’re the best thing that’s ever been mine.


Sarah Is My Padawan/Sarah Defies Gravity

I’ve been thinking about making a post like this since I started my blog. Better late than never, right?

Those of you who know me from Babycenter (read: all of you) know that my Babycenter screenname is sarahismypadawan(04, but that’s beside the point). And of course this is Sarah Defies Gravity.

Why sarahismypadawan? Why Sarah Defies Gravity?

“Padawan” is a Star Wars term. It refers to someone–usually young–who is learning the ways of the Jedi under a Jedi Master (someone who has already completed Jedi training and is knowledgeable on the subject). I think that any parent could consider their baby their padawan, but to me, it signified that although Sarah will need a little–or maybe a lot–more guidance than the “average” kid, but with that guidance, her life will be extraordinary. She will, someday, be a Jedi master. Or a life master. Whichever.

I thought about naming this blog “Sarah Is My Padawan”, but I was inspired (by myself, because I am just that amazing) to use “Sarah Defies Gravity” instead. It is not exactly a secret that I am kind of a freak about showtunes, and if I wasn’t the world’s worst singer, I would probably have run off to Broadway by now. But I’m completely awful at anything musical, so I’ll just write instead.

And of course, “Sarah Defies Gravity” is from the song “Defying Gravity”, from Wicked, which I was inspired to use for her blog name because I’d used “For Good” as the epigraph to her birth story. What does Defying Gravity mean to me? It means never living within the arbitrary limits set for you. It means always expecting something bigger than people say you can have. It’s about making a concerted effort to be the best person you can be, no matter what.

It would have been easy to give up on Sarah. “She can’t learn, so why bother?” It would have been easy to buy into the idea that she would never be anything more than her chromosomes. It would have been easy to let myself believe that she would always be illiterate, that she would never read or write or play an instrument or dance ballet.

But I didn’t. Because I believed that she could defy gravity. Defy people’s expectations. Defy that chromosome, that tiny piece of genetic material that changed everything. And I still do. I believe that Sarah will someday learn to read. I believe that Sarah will someday learn to write. I believe that Sarah will someday dance ballet if she wants to. That she will play an instrument if she wants to. That she will get married, go to college, do whatever she wants.

I also believe that she defies gravity every single day of her life, in everything that she does. Because every day, she is learning and growing. Every day, she’s defying the expectations people have of her–have of Down Syndrome–and that makes her remarkable.

Here I am! (and a public service announcement)

It’s been a little while since I’ve blogged–we’ve been so busy living our lives and doing other things that I don’t usually think about it!

We are doing well in NYC. Sarah is growing and learning and getting bigger and smarter every single day. She sat independently for the first time on Tuesday, we are working on sign language and sitting for longer periods of time. She has started sleeping well again and is a very happy, sunny, sweet, joyful little addition to our lives. I can’t believe that she is almost 9 months old! Where does the time go?

Now, a public service announcement. I chose not to publish the comment that prompted this public service announcement because it was frankly rude, cowardly, and stupid, and I don’t feel the need to give rude, cowardly, stupid people the credit they think they deserve, but they brought up a point that makes sense for me to address, since blogs are often very visual things:

My not posting photos of Sarah is a legal issue. It’s not that I don’t want to. It’s not that I don’t have any. It’s that her mother–who is still her mother until April 20th of this year, at which point, we will move forward having her parental rights revoked–has quite politely requested that I don’t publicly display any photographs of Sarah. I think that’s a perfectly fair and valid thing for her to ask of me, and it’s not something I’m about to violate her trust and disrespect her over. If you don’t like that fact, there is a nifty little red “X” in the corner that you can feel free to click. It’s not going to hurt me any.

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